





That chubby foot is precious to me. I remember when it was the size of the top portion of my middle finger. We have come so far and feel so blessed to have been a part of this miracle. At her last appointment (about 1 month ago), Ella weighed 8lb 9 oz. She has another next week, and I am positive she's pushing 10. She is a chunk. The kids have given her the nickname "Chuboily"- chubby and spoiled. She has monthly visits with her pediatrician and eye dr. She has a hemmorage in her left eye...probably left over from her ROP eye surgery...that is being followed. It may need to be lasered if it remains active. She also sees the cardiologist to check the open valve and hole in her heart. Her gastrointerologist will see her in May to determine the next course of action for her belly. He has wanted her to get bigger and stronger before proceding forward. Ella has been unable to tolerate my breast milk (probably due to a malabsorption disorder), so she has continued on the Elecare. Not being able to nurse her or atleast give her ALL the milk I pumped for her has been a sad thing for me, but I have tried to focus on what is best for my girl. Her Elecare smells so bad (it's a predigested amino acid modified medical formula)...and when she spits it up (and she does that A LOT), it really stinks- like double puke! She struggles with reflux and takes meds for it. She receives in- home therapy bi-weekly. In fact, her therapist just left, and says Ella is doing great. She is meeting all the markers for her "adjusted" age. She loves her therapy time because she gets so much attention. The girl loves attention! We stay busy with life- feedings, family time, diaper changes, church, ball games, school plays, doctor visits, etc... but we are sooooooo happy to be doing all of it together as a family. This last 6 months has been full of many emotions and trials, but I am thankful for what we have gained through it all. We are truly blessed! Heartfelt thanks to each of you for your continued prayers, friendship, love and support. We could not have survived this miraculous, scary, blessed journey without each of you. Here's to the next 6 months! BRING IT!